Friday, May 27, 2011

Brandon's Appointment-UPDATE

Brandon's appointment went ok, not as we had hoped or prayed for, but as I am often reminded when we have to go and sit in the waiting room with children Brandon's age and sometimes younger getting cancer treatments, we are really quite blessed.  
The cyst has grown but our Dr. thinks they will be able to reach it better now that is has grown more to the outer part of his hip, so we are looking at going back to out patient surgery the end of July, the 26th to be exact (I found out the date today) where they will inject it with steroids to hopefully stop the growth of the cyst and promote growth of the bone.
We may have to do a series of those steroids in his hip, we are not sure yet, we really won't know until after the first time to see what happens at the point. He will have to go up and be put under but shouldn't have to spend the night unless something goes wrong. 
Thank you for your prayers-it wasn't quite what we were hoping for and we aren't sure this will work, but the Dr, wants to try this before surgery again since that would damage the good that has been done in part of the hip so far and the Dr. feels the body would just absorb the new bone marrow packing in that area again like it did the first time resulting in no more progress or having to go above the area that the rod is now and possibly doing damage to the tissue that supplies blood to the bone in his hip causing it to die which would be terrible, resulting in hip replacements, so for now the shots are the best way to go. 
We are praying this works now so we can hold off on surgery for as long as possible since we will be looking at probably   2 more surgeries in the future-we would just like to hold off for as long as possible on that, it was pretty traumatic for him and us. :(
I am sorry to not have updated this sooner-I tried twice yesterday and it kept sticking and not letting me erase things as I   typed and so I gave up and decided today would be a better day to try. 
Today was our first day with no school and so I had more free time, I am thankful for that.   Alyssa has her dance recital tomorrow and then VBS starts next weekend through the week and I am directing the 1st grade so I am trying to get ready for that-a little crazy, but after all that it will be summer here and we are planning on having a lazy summer with lots of fun around our house since gas is so high.  At least we can swim this summer since his arm isn't broken this year and so that will make things better. :)  
Thank you again so much for all the sweet words and comments and your prayers.   I felt an incredible amount of peace while we were at the Dr.'s even when she was explaining the cyst had grown and what that meant. It was an incredible to know we were being covered in prayers while we were there.
I have had the words to the song "Carry You" running through my head all day today the words are this: 


Lay down your burden I will carry you
I will carry you my child, my child
Lay down your burden I will carry you
I will carry you my child, my child

Cause I can walk on water...
Calm a restless sea
I've done a thousand things you've never done
And I'm really watching
While you struggle on your way
Call on my name, Ill come

Lay down your burden I will carry you
I will carry you my child, my child
Lay down your burden I will carry you
I will carry you my child, my child

I give vision to the blind
I can raise the dead
I've seen the darker side of hell
And I've returned
I've seen those sleepless night
And Count every tear you cry
Some lessons hurt to learn

Lay down your burden I will carry you
I will carry you my child, my child
Lay down your burden I will carry you
I will carry you my child, my child
 

I am so thankful that I can lay the burdens of my heart at His feet, He knows my fears about this, He knows and see the bigger picture of all of this-I just need to trust His greater way-His plan-and be thankful for His grace and the love of each of you and your prayers to help get us through all this.


Love you all-thanks again for your prayers.


On This Pathway-
Jill

4 comments:

Janette@Janette's Sage said...

Hugs...you never left my heart or prayers. One of our elders went in for brain surgery on the same day. On the same day we found out we have to move, which was a shock to me, so instead of just falling apart I turned to praying for you and for our elder. My situation is just only a hick up in the road and I wanted to focus on you and them.

He will lift you up, He will strengthen you, He will support you, He is there. He brings healing in His wings.

I am part of the body of Christ and so being I would love to help in anyway...if I need to come to Fort Worth, watch the other kids or just set in the waiting room and pray...I will.

Hugs and look for some fun things to do with your little ones this summer...God is faithful!

Janet said...

Thanks for the update. I have been praying for Brandon and will continue him and your family in my prayers.

Stay strong my friend!

Blessings & Love
Janet

Trisha said...

Dear Jill,
I'm so glad you posted this update! I've been wondering what's going on, and I like knowing how to pray for you. May God pour out on you fresh supplies of grace that you may trust Him more and more, knowing He is truly working this all for good. Much love and many hugs to you, sweet friend!!

Linda said...

Your song tells it all so well. I am so glad you have the Lord in your lives to help you through this journey!

Thanks for the update!

God Bless!

Linda @ Truthful Tidbits